We left Pittsburgh, drove for 7 1/2 hours and are now in Waterbury, CT. Heading home, sweet home, my beloved New England. I hope some one out there Googles Chondrosarcoma and finds me....I have so much to learn but want to be a guide. I know when they told me they thought I had Chondrosarcoma I was devastated to say the least. I am very hopeful right now. On a scale of 1-10, 10 being the most malignant, my biopsy came back as a 1-2. I am so blessed. My doctor, Daniel Prevedello, thinks he got 100% of what he could see with his eyes. He said it was a landmark surgery, they did things in my skull they had never done before because of the location of my tumor. He thinks it is over 2 1/2 years old....What was I doing then? Seems so strange to think of my life like that, my body growing a tumor. There will always be some cells left behind so I am going to get Proton Beam (sounds like a comic book ZAP, POW) radiation to hopefully kill the rest of the cells. So far they only have 10 years of data on regrowth and with radiation it looks good. I am hopeful.
On side note, my wonderful dog Roosevelt died two years ago this April of a similar tumor in his skull that eroded his skull and also grew a polyp type tumor. We kept him going for a year and he couldn't make it, the pain was too much.
If you Google and find me, I went to the University of Pittsburgh Medical Center in Oakland, Pittsburgh, PA. I had surgery on Monday and was released from the hospital 2 days later. I was released from their care 8 days later. They have it dialed in there and have done over 1200 extended endonasal surgeries. Google them, send them an email, write to me at this blog.
I have to thank all of my dear friends and family for praying for me, for thinking of me, for worrying, for loving me. I love you all. My life is so rich, so full and I am so thankful. My life begins anew....Peace.
On side note, my wonderful dog Roosevelt died two years ago this April of a similar tumor in his skull that eroded his skull and also grew a polyp type tumor. We kept him going for a year and he couldn't make it, the pain was too much.
If you Google and find me, I went to the University of Pittsburgh Medical Center in Oakland, Pittsburgh, PA. I had surgery on Monday and was released from the hospital 2 days later. I was released from their care 8 days later. They have it dialed in there and have done over 1200 extended endonasal surgeries. Google them, send them an email, write to me at this blog.
I have to thank all of my dear friends and family for praying for me, for thinking of me, for worrying, for loving me. I love you all. My life is so rich, so full and I am so thankful. My life begins anew....Peace.
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